I don't usually blog abut the news, but this is important to me. I am speaking up because silence and/or indifference always helps the oppressor, never the victim. Any hate will be treated with the contempt it deserves and ignored.
Coming Home
Today I started my new routine of dialysis from the comfort of my own home. Frequent dialysis is better dialysis, however the treatment provided at the kidney unit really is the minimum they can get away with; roughly the equivalent of a single kidney working at about 5% capacity. Since lockdown I had been receiving … Continue reading Coming Home
Fundraising Grand Total
My Just Giving page has closed at a grand total of £3,201.32 inc. gift aid!
Preparing For The Long Run
Perhaps the Dali Lama was right when he said that not getting what you want is sometimes a wonderful stroke of luck? #TeamKidney
It Works!
Sorry for having a downer on you all last week. I really did feel terrible and could not have envisaged how effective my dialysis treatment would be. Last week my line was (rather gruesomely) inserted into my neck and I had my first session of treatment that same day. This was followed up on Wednesday … Continue reading It Works!
Youth is Wasted on the Young
I Never thought it would come to this. I knew that my illness was progressive, and that it would get worse before it got better, but that eventuality always seemed like a long, long way off. It was easy to put it out of my mind and make believe that all was well. But lately … Continue reading Youth is Wasted on the Young
Trading Daylight
It's a quarter to one in the morning and I can't sleep. I was warned this would happen. I lie there and can hear the blood in my veins as it rushes about my head. My sinuses are blocked so I can't breathe properly and when I do sleep - an exhausted, fidgety sleep - … Continue reading Trading Daylight
I Made the List; Time to Start Again
Today I had some news; I have finally been placed on the transplant list! This means that, following my impromptu heart operation, I have been given the all-clear for transplant. Most of you will know that my Mum has been matched as my principle living donor. She has been worked up over the course of … Continue reading I Made the List; Time to Start Again
I’m Abnormal! Who Knew?!
Some of you may no doubt have picked up from a previous blog that, not content with kidney failure and a long-standing diagnosis of epilepsy, the doctors thought it timely to diagnose me with a heart problem. Accordingly, I spent much of yesterday at the UHNM wired up to various machines and being quizzed by … Continue reading I’m Abnormal! Who Knew?!
Time To Start a Bucket List
Yesterday I visited the surgeon at Queen Elizabeth Hospital in Birmingham and talked transplants. Typically, the NHS system in Stoke does not talk to the system in Birmingham, so there was a lot of repetition; information, questions, blood tests, talk of what will happen and possible consequences, but the upshot of the meeting was overwhelmingly … Continue reading Time To Start a Bucket List
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